If you missed the special Rare Disease Day episode of Lifetime’s “The Balancing Act” which featured a segment on pheochromocytoma, never fear: The show’s YouTube channel contains the complete piece!
While you’re there, head over to our channel to see our NET Cancer Day PSAs, and view other patient stories. Want to share your experience as a pheo/para survivor with others? Make a video and contact us — we’re always accepting submissions, and your story might be featured in our next PSA!
If we had to list posts we’d like to see spread far and wide, Dr. Ruban Dhaliwal’s November presentation at the Pheochromocytoma and Paraganglioma 2015 International Conference would be one of our top picks. Primary care physicians are usually the first to encounter the symptoms of these tumors, and What Every Primary Doctor Needs to Know About Pheochromocytoma and Paraganglioma provides good basic information on what to look for, how to properly conduct testing, and when to pull in colleagues from specialized areas of practice.
As with all the links we will be posting, we encourage any patients reading this to share with their doctors. If you’re a medical professional, we hope that you will take the time to listen to the presentations and view the slides.
Please note: the videos for the conference are supported by the Firefox browser.
Thanks to the Pheo Para Troopers for their kind permission to re-post links to their videos from the conference.
The title says it all… As of this week, the Pheo Para Project has its own Facebook page!
On our page you will find information on pheochromocytoma and paraganglioma and news about our latest video projects. In addition – and most importantly – you will be able to connect with other patients and family members. Please look us up and “Like” us now: The Pheo Para Project on Facebook
Also, remember that we are on Twitter. Though our latest tweets are visible to from this site, we encourage you to connect directly with us: @PheoParaProj on Twitter