The SDH-Deficient Cancer Research Advocates is supporting researchers by connecting them with patients willing to donate tumor tissue. As SDH-RA co-founder Becky Owens noted,
“Sending tissue to researchers is of vital importance for development of cell lines and mouse models for research.”
Anyone having surgery for SDH-deficient GIST tumors, or pheochromocytoma/paraganglioma tumors regardless of mutation is encouraged to contact Ms. Owens via email for assistance in making arrangements for tumor tissue to be saved and transported.
The Pheo Para Project 