Month: November 2015

Remembering Lori

Our condolences to Erin, Julie, and their family. We are sad to report that pheo has taken another life all too soon. Stories like Lori Kozempel’s emphasize the painful reality of pheochromocytoma; we know too little and we must help patients and medical professionals learn how to diagnose early. Julie Yankanich, Lori’s daughter, is telling…

#netcancerday

It’s NET* Cancer Day! Read on to learn why today is so important. Why do we need this day? Too frequently patients are misdiagnosed when presenting symptoms of NET cancer. Common misdiagnoses are IBS, asthma, diabetes. Patients with pheochromocytoma often have their symptoms attributed to anxiety, menopause, hypertension, and thyroid disorders. The average patient with…

Today

Today is NET Cancer Day. Throughout social media today, you’ll see lots of zebras, and lots of stories of delayed diagnosis. Unfortunately, regardless of the type, neuroendocrine cancers tend to by asymptomatic, or to cause symptoms which are easily confused for more common health conditions. To learn more, visit our Resources page for some links to pheo/para- and NET-related…

NET Cancer Day

November 10 is NET Cancer Day. Our first project, a brief informational video designed to increase public awareness of pheos, paras, and the symptoms they cause, will be live on our YouTube channel that day. In addition, each participant’s complete individual story will be available for viewing. Many heartfelt thanks to our brave contributors, who…