We’re helping our friends at the Pheo Para Alliance gather video submissions to be used during Pheo Para Awareness Week, which takes place during the last full week of August (August 23-27!). Your video will help create a compilation video highlighting the theme
“You are Not Alone.”
Patients, caregivers/family/allies and healthcare providers are all encouraged to take part! Here’s what we’re looking for:
Record a video, using the following script:
“My name is (name) from (city, state, country), and I am a (patient/caregiver/healthcare provider)”
“A pheo or para diagnosis often comes with feelings of loneliness and isolation, but together we can create an international community of support to empower and inspire everyone with pheo or para. You may be rare, but you are not alone.”
Say the words “paraganglioma” and “pheochromocytoma” by themselves.
Say the phrase, “I am pheo para fearless.”
Portions of your video will be edited and used, so don’t worry about making it perfect, but please make sure you have good lighting, can be heard clearly and hold your phone sideways, in horizontal/landscape mode. Upload videos to dropbox.com or Google Drive and share with info@pheopara.org by JULY 20.
By participating, you agree to allow Pheo Para Alliance to use your likeness and edit your video for promotional materials.
All languages welcome!
The Pheo Para Project 
Do you want participants to follow the script exactly or do you want their story using the script as a base?
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Participants are welcome to use the letters of introduction as they are, or provide something in their own words. Our advice would be to keep the letter to a single page, and to keep the tone positive. We would prefer that the rest of the packet’s contents be unaltered. If you have suggestions for changes, please contact us!
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