Poorly-understood diseases become manageable because of the hard work of researchers who dedicate themselves to gaining understanding and finding ways to help patients move forward after diagnosis. If you can, please consider donating to support pheo/para research:
Click the link above, and select “Pheochromocytoma” in the research fund drop-down box. Then Click “Make a memorial donation” and dedicate your gift to Lori Kozempel.
To donate by mail, please send a check to the NORD Connecticut office:
National Organization for Rare Disorders
55 Kenosia Avenue
Danbury, CT 06810
Or to donate by phone, please call to Mary Talbot who is an Accountant at NORD:
Donate to Dr. Karel Pacak’s research at the NIH:
Protocol 00 CH 0093
Diagnosis, Pathophysiology, and Molecular Biology of Pheochromocytoma and Paraganglioma
Make checks payable to NICHD/00 CH 0093, and mail to
Eunice Kennedy Shriver National Institute of
Child Health and Human Development (NICHD)
31 Center Drive
Building 31, Room 2A32
Bethesda, MD 20892-2425
Include a brief letter with your name, address, phone number and a statement that the money is to be used for the protocol noted above.
The Pheo Para Project 