Month: July 2021

Six-Month Challenge to Change the World

Our founder has issued a challenge to pheo/para patients and allies across the United States, and around the world. She writes

“As many of you know, I founded the Pheo Para Project to raise awareness after the death of my brother John. Our motto is “Building hope, one story at a time…” I believe the positive changes we see in the world, whether large or small, are the result of an accumulation of small actions taken every day by ordinary people hoping to move the world in an extraordinary direction…”

Read more, and learn how you can be a part of our campaign, here.

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Call for Video Submissions!

We’re helping our friends at the Pheo Para Alliance gather video submissions to be used during Pheo Para Awareness Week, which takes place during the last full week of August (August 23-27!). Your video will help create a compilation video highlighting the theme

“You are Not Alone.”

Patients, caregivers/family/allies and healthcare providers are all encouraged to take part! Here’s what we’re looking for:

Record a video, using the following script:

“My name is (name) from (city, state, country), and I am a (patient/caregiver/healthcare provider)”

“A pheo or para diagnosis often comes with feelings of loneliness and isolation, but together we can create an international community of support to empower and inspire everyone with pheo or para. You may be rare, but you are not alone.”

Say the words “paraganglioma” and “pheochromocytoma” by themselves.

Say the phrase, “I am pheo para fearless.”

Portions of your video will be edited and used, so don’t worry about making it perfect, but please make sure you have good lighting, can be heard clearly and hold your phone sideways, in horizontal/landscape mode. Upload videos to dropbox.com or Google Drive and share with info@pheopara.org by JULY 20.

By participating, you agree to allow Pheo Para Alliance to use your likeness and edit your video for promotional materials.

All languages welcome!