Our founder has issued a challenge to pheo/para patients and allies across the United States, and around the world. She writes “As many of you know, I founded the Pheo Para Project to raise awareness after the death of my brother John. Our motto is “Building hope, one story at a time…” I believe the…
Tag: Paraganglioma
Call for Video Submissions!
We’re helping our friends at the Pheo Para Alliance gather video submissions to be used during Pheo Para Awareness Week, which takes place during the last full week of August (August 23-27!). Your video will help create a compilation video highlighting the theme “You are Not Alone.” Patients, caregivers/family/allies and healthcare providers are all encouraged…
Featured This Week: Catecholamines
If you’re a pheo patient, or if you know one, you’ve probably heard a lot about catecholamines. But, do you know what they are, and how they relate to pheochromocytoma? During last November’s Pheochromocytoma and Paraganglioma 2015 International Conference, Dr. Vitaly Kantorovich presented up-to-date information on catecholamines, and why both their levels and biochemical composition are important to…
Featured This Week: Modern Imaging
There has been growing discussion regarding the most effective way to image neuroendocrine tumors, including pheos and paras, which culminated with an announcement on June 1st that the United States Food and Drug Administration (FDA) has approved the use of Netspot. Netspot is a kit designed to deliver a single dose of radioactive diagnostic agent Ga-68 DOTA-TATE to patients via…
Featured This Week: What Every Primary Doctor Needs to Know About Pheochromocytoma and Paraganglioma
If we had to list posts we’d like to see spread far and wide, Dr. Ruban Dhaliwal’s November presentation at the Pheochromocytoma and Paraganglioma 2015 International Conference would be one of our top picks. Primary care physicians are usually the first to encounter the symptoms of these tumors, and What Every Primary Doctor Needs to Know About Pheochromocytoma…
Featured This Week: Pediatric Management of Pheochromocytoma
Since the NIH’s recent study linking pediatric pheochromocytoma to ADHD is getting a lot of buzz, we decided to kick off the first installment of our new miniseries “Featured This Week” with Dr. Jonathan Riddell’s discussion on Pediatric Management of Pheochromocytoma. Dr. Riddell was one of the speakers at the Pheochromocytoma and Paraganglioma 2015 International Conference, held at Upstate University in Syracuse,…
Call for Submissions: NET Cancer Day 2016
The Pheo Para Project is officially calling for a new round of user submissions from patients as we look forward to producing our second annual NET Cancer Day PSA. Last year, we saw a narrative of frustration and misdiagnosis unfold in the stories we received. This year, we would like to hear from patients, organizations…
