Category: Featured This Week

Pheochromocytoma: The Last Episode

Filmmaker Attiya Khan contacted the Pheo Para Alliance just before Rare Disease Day last year to talk about her diagnosis of pheochromocytoma. Naturally, we asked her if she’d consider participating in our annual NET Cancer Day PSA. To our great delight, she said yes! Attiya’s video made a great impression on World NET Cancer Day 2017, striking…

Featured This Week: Catecholamines

If you’re a pheo patient, or if you know one, you’ve probably heard a lot about catecholamines. But, do you know what they are, and how they relate to pheochromocytoma? During last November’s Pheochromocytoma and Paraganglioma 2015 International Conference, Dr. Vitaly Kantorovich presented up-to-date information on catecholamines, and why both their levels and biochemical composition are important to…

Featured This Week: Modern Imaging

There has been growing discussion regarding the most effective way to image neuroendocrine tumors, including pheos and paras, which culminated with an announcement on June 1st that the United States Food and Drug Administration (FDA) has approved the use of Netspot. Netspot is a kit designed to deliver a single dose of radioactive diagnostic agent Ga-68 DOTA-TATE to patients via…

Featured This Week: What Every Primary Doctor Needs to Know About Pheochromocytoma and Paraganglioma

If we had to list posts we’d like to see spread far and wide, Dr. Ruban Dhaliwal’s November presentation at the Pheochromocytoma and Paraganglioma 2015 International Conference would be one of our top picks. Primary care physicians are usually the first to encounter the symptoms of these tumors, and What Every Primary Doctor Needs to Know About Pheochromocytoma…

Featured This Week: Pediatric Management of Pheochromocytoma

Since the NIH’s recent study linking pediatric pheochromocytoma to ADHD is getting a lot of buzz, we decided to kick off the first installment of our new miniseries “Featured This Week” with Dr. Jonathan Riddell’s discussion on Pediatric Management of Pheochromocytoma. Dr. Riddell was one of the speakers at the Pheochromocytoma and Paraganglioma 2015 International Conference, held at Upstate University in Syracuse,…

Remembering Lori

Our condolences to Erin, Julie, and their family. We are sad to report that pheo has taken another life all too soon. Stories like Lori Kozempel’s emphasize the painful reality of pheochromocytoma; we know too little and we must help patients and medical professionals learn how to diagnose early. Julie Yankanich, Lori’s daughter, is telling…