Our condolences to Erin, Julie, and their family. We are sad to report that pheo has taken another life all too soon. Stories like Lori Kozempel’s emphasize the painful reality of pheochromocytoma; we know too little and we must help patients and medical professionals learn how to diagnose early.
Julie Yankanich, Lori’s daughter, is telling her story and raising awareness with the help of her daughter, Erin. Please take a moment and read about Lori and Julie.
#NET #NETcancer #neuroendocrine #incaliance
It’s NET* Cancer Day! Read on to learn why today is so important.
Why do we need this day?
Too frequently patients are misdiagnosed when presenting symptoms of NET cancer. Common misdiagnoses are IBS, asthma, diabetes. Patients with pheochromocytoma often have their symptoms attributed to anxiety, menopause, hypertension, and thyroid disorders. The average patient with NET cancer will see six different healthcare professionals, over twelve visits, before they are correctly diagnosed. (INCA)
How does NET Cancer Day help?
Raising awareness about NET cancers helps empower patients and medical professionals. Better information leads to earlier diagnosis, well-informed medical professionals, and overall improved quality of life for people with NET cancer and their families.
NET Cancer Day is a worldwide campaign. Accessible and equal care and treatment for NET cancer patients is a priority of NET Cancer Day. This helps strengthen international and local communities and improves public health all over the world. Working together is the best way to learn and grow. (NET Cancer Day)
Where can I learn more?
To learn more about NET Cancer Day, go to their home page or check out their Twitter account (@netcancerday). For more information about pheochromocytoma and paraganglioma, we recommend starting with Dr. Karel Pacak’s page with the National Institutes of Health (NIH).
Learning is the first step toward making a change! Educate yourself and others with the resources above.
#netcancerday #netcancer #neuroendocrine #incalliance
*NET stands for neuroendocrine tumor.