In honor of #RareDiseaseDay, the Pheo Para Project has remixed the PSA we produced and distributed in late 2015 for NET Cancer Day. Like its predecessor, it is intended to serve as a point of focus for those with pheochromocytomas and paragangliomas during this time when similar conditions are in the spotlight.
As we note in the video, roughly one in ten Americans today is currently diagnosed with a rare disease. The chances are very good that each of you reading this knows at least one person with such a diagnosis.
Those with rare diseases struggle with both obtaining that diagnosis, and with finding treatment options. Symptoms of rare diseases make them easy to mistake for other, more common conditions. Once diagnosed, many patients find they have limited treatment options, because research into rare diseases isn’t funded at the same levels as research into diseases currently thought to be more common.
Today, on the rarest of days, we want you to hear the voices of those diagnosed with rare diseases. Please, when you make the choice this year to make a charitable contribution, consider funding research into rare diseases.