About Us/Contact

The Pheo Para Project was founded in 2015 as a platform to showcase stories about pheochromocytoma and paraganglioma, made by patients and their families, to provide information about these rare neuroendocrine tumors, and to amplify the work of other organizations in the pheo/para community through partnership and support. Since our founding, we’ve produced two videos for World NET Cancer Day directly, and served as consulting producers for Attiya Khan’s 2017 offering, “Pheochromocytoma: The Last Episode.”

The Pheo Para Project’s goal is to increase awareness of pheochromocytoma and paraganglioma, and to support patients with these rare tumors, as well as their families and caregivers. If you’re a patient arriving here for the first time, we want you to know that you are not alone. We’re here for you, whether you’re looking for help finding a doctor, information about your diagnosis, or a sympathetic ear. If you are a clinician, or someone interested in learning more, we have provided links to our videos, off-site educational resources and support groups, and information on how you can donate to research efforts into this rare cancer.

We are always accepting stories! If you’d like to participate, please contact us:

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